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Naomi1
#1 Posted : Monday, May 27, 2013 1:46:35 AM Quote
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Location: Torbay
Hi all. I'm a complete mess physically. I have been having recurrent bouts of cholecyctitis (inflamed gallbladder) and even ended up in hospital one night on morphine due to the extreme pain. The pain is excruciating and has me writhing about. The only way to stop the attacks is to eat a virtually fat free diet which is horrible. I'm absolutely craving fat and feel so low on energy and quite shaky. On top of that I've been going to the loo every 2 hours throughout the night so had a urine test and it showed protein and blood in the urine (but no infection). The GP said it might be my kidneys and I have to go back for a repeat test. The joints are playing up too now, probably from the stress of all this. The white cell count is way up and so too are my liver enzymes. Has anyone else had kidney problems or gall bladder surgery? I'm terrified of the surgery and very concerned about the kidneys too. I'm wondering if the RA has caused my immune system to attack the kidneys. Has anyone has any experiences of what I'm going through or got any advice?
Jane.
#2 Posted : Monday, May 27, 2013 6:36:57 AM Quote
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Location: where the sun always shines :o
Hello Naomi

I have no experience of what you are going through, instead I would love to be able give your a gentle hugWub
It's always sad to read of other people bad times but all I can offer is comfort.
I so hope things improve for you not to be in so pain.
Take care my lovely
Hugs to you. Wub Love
Jane xWub xWub
Sheila-R
#3 Posted : Monday, May 27, 2013 8:13:38 AM Quote
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Oooh Naomi, that all sounds painful. I know you are worried about having an op but from what I know from a relative who had her gall bladder removed it bought instant relief, are they planning to remove yours? If so I am sure you will be in good hands I know its scarey having an op but could it be the gall bladder thats causing the other problems as well.
I know a completely fat free diet isn't much fun to say the least as I was on that when I had a suspected gall stone (turned out to be nothing and after the last awful attack in the middle of the night after I was sick the pain went. By the time I went for a scan there was nothing there so goodness knows what that was all about - maybe it culd have been the RA as it wasn't under control at that time.
I hope you have a better day today and they get you sorted out quickly, but please don't be to worried about an op.
Love
Sheila
Naomi1
#4 Posted : Monday, May 27, 2013 12:21:29 PM Quote
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Location: Torbay
Sheila, just to let you know that around one in 20 cases of inflamed gallbladder happen in the absence of stones. I do hope you've seen the last of it. Maybe you had a stone but it 'passed'. I know I have stones as I had a scan around 10 years ago. Back then my symptoms seemed to disappear overnight so I cancelled the scheduled surgery. I'm pretty sure the docs will suggest taking mine out as they have been causing problems daily in recent weeks. XXX
Sheila-R
#5 Posted : Tuesday, May 28, 2013 5:12:02 PM Quote
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Thanks Naomi, I didn't know that about infamed gall bladder, haven't felt it for 14 months now so will keep my fingers crossed for both of us. Hope you are having some relief from it today, its still best out surely.
Best wishea
Sheila
suzanne_p
#6 Posted : Wednesday, May 29, 2013 2:55:33 PM Quote
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Location: Buckinghamshire
hi Naomi,

so sorry to hear of what you're going through .. can't help in any way, thought we hadn't see you here for a while now I know why!

just to say hope things improve for you,

Suzanne x
sylviax
#7 Posted : Wednesday, May 29, 2013 3:55:58 PM Quote
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Location: Newton Abbot
Hi Naomi - yes I'd missed you too, although I haven't been around as much myself. So sorry to hear that you've got got all this going on - at least you know that you're in good hands at Torbay hospital - hopefully you'll get the treatment you need real soon.

Love and hugs - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Rebecca D
#8 Posted : Wednesday, May 29, 2013 8:49:22 PM Quote
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So Sorry Naomi you are having such a horrible time.

Unfortunately this beast of a rheumatoid disease does affect organs, including the gall bladder and increases your frequency of developing gall stones. It must be really painful what you are going through.

The methotrexate can affect your kidneys and liver enzymes, I hope you have an appointment with your specialist soon, you really need some guidance on what the best step is to take.

Sending support and best wishes
Rebecca
Naomi1
#9 Posted : Sunday, June 02, 2013 12:47:13 AM Quote
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Thanks everyone. I didn't realise that RA could exacerbate gall bladder problems. I had my bloods taken for a routine appointment the morning after the worst attack (the one that landed me in hospital) and my liver enzymes were through the roof as well as the white cell count. I'm hoping this won't interfere with my RA treatment. I'm still suffering. In the 11 days since this all flared up I've only had 2 evenings without severe pain and on both those occasions the Gb was 'grumbling'. I have a scan on Tuesday to see what's going on in there. I hate the idea of surgery......I'll be so worried and upset but I know I can't go on like this either. :(
Paul Barrett
#10 Posted : Sunday, June 02, 2013 3:10:19 AM Quote
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If it's any comfort, it's a keyhole surgery procedure these days and the results are good if my daughter-in-law is anything to go by. It'll be a low(is) fat diet from now one though since the GB produces enzymes that deal with fat, as far as I remember. My D-I-L isn't an RA sufferer but the GB problems on their own were pretty awful so you must really be feeling it.

You may have to suspend auto immune suppressants before surgery though. :(
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Paul Barrett
#11 Posted : Sunday, June 02, 2013 3:42:49 AM Quote
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I just read on a site that Ginger exacerbates GB problems. Something to think about if you have been reading the various posts here about the benefits of ginger for RA
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
sylviax
#12 Posted : Sunday, June 02, 2013 7:32:36 AM Quote
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Hi Naomi - really feel for you. As Paul says gallbladder surgery is keyhole these days, so try to relax and think happy thoughts - it'll be worth it when it eases your pain

Very best wishes - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Paula-C
#13 Posted : Sunday, June 02, 2013 8:49:47 PM Quote
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Location: Nottinghamshire
Hello Naomi

Not been on here lately, been away on holiday and been busy, just popped on to see how everyone is doing and read your post.

Sorry I can't help regarding the gallbladder and if it is RA that is causing it, but just wanted to send you a hug and let you know that I am thinking about you.

Hope things get better for you soon and you get some answers on Tuesday.

Love and Hugs
Paula x
rosie1157
#14 Posted : Monday, June 03, 2013 1:13:48 PM Quote
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Location: St. George, Bristol
Hi Naomi.

Sorry to hear how desperate you feel, and I hope you have someone to help you. I know how painful an inflamed gall bladder can be. I suffered for a long time,not wanting to have surgery and ended up having urgent surgery.Keyhole is used - I had 3 tiny cuts and it was whipped out. Bliss and relatively pain free procedure.

Hope this helps you make your decision xx
Rosie
Rose-B
#15 Posted : Friday, June 14, 2013 11:48:20 PM Quote
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How are you know Naomi ?

Hope you ok

Rose
Naomi1
#16 Posted : Sunday, June 23, 2013 12:43:18 AM Quote
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Location: Torbay
Hi....thanks for asking Rose and thanks for all your support. The Gb is fine now but the antibiotics or the infection caused a massive flare. I will try to post a picture of my ankles which are humungously swollen. The GP said to continue with the Mtx whilst taking the anti biotics. I had questioned this as it seemed that I was working in 2 directions (i.e. fighting infection and fighting my immune system). The concultant said though that I should have stopped the Mtx for a fortnight and that not doing so had probably induced this flare....you plug one hole and another leaks eh? xxxxxxx
lisamcb
#17 Posted : Sunday, June 23, 2013 9:53:21 AM Quote
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Location: Dumfries
Hi Naomi

Sorry to hear you have been having such a rough time of it. I hope your flare-up is starting to settle down a wee bit and you are getting lots of TLC.

Take care.

Lisa xx
Jane.
#18 Posted : Sunday, June 23, 2013 9:58:01 AM Quote
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Location: where the sun always shines :o
Sorry to hear of your rough time Naomi.
I hope your behaves for you soon.
Jane
XxxWub
Blue Star
#19 Posted : Sunday, June 23, 2013 12:09:15 PM Quote
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Hi Naomi sounds like you been having a terrible time !
Hope your flare settles soon and you can get the gallbladder sorted

Sophie x
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